The Ageing Scientist
S5E5 Big data on care homes

S5E5 Big data on care homes

May 31, 2022

How can we test whether different types of care work or not? With data. the social care sector in the UK has been lacking coherent, linked up data even before the pandemic, but COVID-19 highlighted how much we are missing big data on care homes. Other countries have systems in place, so what we can we learn from them? 

In this episode, I am joined by Prof Adam Gordon from the University of Nottingham. Adam is Professor of the Care of Older People, and has been leading research in care homes for over a decade now, mainly looking at models of healthcare and how to prevent avoidable harm in care homes.   

S5E4 The value of family carers

S5E4 The value of family carers

May 31, 2022

Family carers remain an important part in the live of someone living in a care home. Often, the importance of family carers, and their consideration as individuals who have rights and need to be supported can be overlooked though.

In this episode, I am joined by two active members from Rights for Residents (@rightsforresid2), Diane and Kate, and Dr Alys Griffiths from the University of Liverpool, discussing the value of family carers, from pandemic to beyond.

S5E3 Green Care Farms

S5E3 Green Care Farms

May 31, 2022

In this episode, I am chatting to Katharina Rosteius, PhD student at Maastricht University in the Netherlands, and Maud Coolen, Green Care Farm owner. Green Care Farms a re a specific type of long-term care growing in popularity in the Netherlands. Maud runs such a care setting with her family, De Port Green Care Farm, and shares her experiences of how residents seem to have a better quality of life and live longer than in usual long-term care settings. 

To follow updates about De Port Green Care Farm, follow Maud on instagram: ma.o.uderenzorg

S5E2 Innovative Long-Term Care

S5E2 Innovative Long-Term Care

May 31, 2022

With Season 5 focusing on different aspects of care homes, in this episode I am chatting with three Dutch long-term care researchers from Maastricht University about innovative long-term care. What is innovative care? What can we learn from other countries and settings? Prof Hilde Verbeek, Dr Bram de Boer, and PhD student Mara Bouwens are sharing their experiences, and how innovative care homes have adapted differently during the pandemic.

S5E1 Human rights in care homes

S5E1 Human rights in care homes

May 31, 2022

In this fifth season, I am focusing on different aspects of care homes. Starting off Season 5, I am joined by Dr Caroline Green from King's College London and Prof Debby Gerritsen from Radboud University in the Netherlands in Episode 1, where we discuss human rights in care homes.

Human rights have been badly affected during the pandemic, but there are wider issues surrounding the human rights of care home residents, and their families, which we need to put a spotlight on.

Dementia Action Week 2022

Dementia Action Week 2022

May 16, 2022

It's Dementia Action Week 2022 in the UK. This week, there are plenty of activities to raise awareness and spring into action to address dementia. In the next couple of years, there will be an estimated 1 million people living with dementia in the UK, and we've already reached 55 million world wide. And of course, there are hundreds of thousands of unpaid carers supporting their relative or friend with dementia.

In this special #DAW2022 episode, I am talking to the Alzheimer's Society (Malayka Rahman and Hayley Hogan) and Hilary Tetlow, former carer and host of the peer support groups SURF Liverpool, about what DAW means and what we can all do to address dementia.

S4E5 Ethnicity and dementia

S4E5 Ethnicity and dementia

March 1, 2022

In this episode, I am joined by Dr Sahdia Parveen from the Centre for Dementia Studies at the University of Bradford. Sahdia is a health psychologist, and we are discussing how people from minority ethnic backgrounds experience accessing dementia care, with a particular focus on people from South Asian communities. 

Follow Sahdia on twitter: @SahdiaParveen

 

S4E4 Young-onset dementia

S4E4 Young-onset dementia

March 1, 2022

What is young-onset dementia? What is it like living with dementia at a younger age and caring for a loved one? In this podcast, Chris and Jayne are sharing their personal story about living with dementia and caring, and changing the attitude of how one can live with dementia. Dr Monica Cations is also joining the panel and discussing her insights from how the Australian care sector supports people with young-onset dementia.

Chris Roberts is from Wales. He is living with emphysema and with mixed dementia, Vascular and Alzheimers. He spends a lot of time raising awareness of dementia, its symptoms, promoting better services and support to dispel the stigma that it is associated with together with his wife Jayne Goodrick. He is a Board Member of Alzheimer Europe as well as the Chair of the European Working Group of People With Dementia, and an Ambassador for Alzheimer’s Society UK/Cymru. 

Monica Cations is a psychologist and epidemiologist who has worked in clinical and research roles with people with young onset dementia and their care partners for over a decade. Monica’s research currently focusses on post-diagnosis service delivery for young people with dementia, aiming to improve access to high quality, person-driven care.

To follow Chris, Jayne, and Monica on twitter, here are their handles: @Chris Roberts, @Jayne Goodrick, @monicacations

 

S4E3 Rare dementias

S4E3 Rare dementias

March 1, 2022

In this episode, I am talking to academic-clinician Dr Anna Volkmer, The Lewy Body Society charity, and Dr Riona McArdle. We are discussing what rare dementias are, and what treatments are out there, and why it is so important to better understand what happens in different rarer forms of dementias to provide adequate care plans.

Dr Anna Volkmer is a clinical academic speech and language therapist at UCL. Anna works as a senior speech and language therapist in the Cognitive Disorders Service at the National Hospital for Neurology where she diagnoses and treats people with dementia. 

Jacqui Cannon is CEO of The Lewy Body Society and a former carer for her dad who lived with Lewy body dementia.

Dr Ríona Mc Ardle is a NIHR Advanced Fellow at Newcastle University. Her research ambition is to improve how we diagnose and care for people with dementia through novel applications of digital healthcare. She has led the largest study to date to examine patterns of gait in Lewy body disease and Alzheimer's disease using wearable technology in clinical and real-world environments. 

Follow this episode's panellists on twitter: @lbsorg, @volkmer_anna, @RionaMcArdle

S4E2 Care after a diagnosis

S4E2 Care after a diagnosis

March 1, 2022

Good care after a diagnosis is vital - but how is care provided once someone has received a diagnosis? And what are the differences between the UK and Canada? In this episode, I am joined by Leah Rickards, Admiral Nurse, and Dr Robert Madan, Geriatric Psychiatrist.

Leah is an Admiral Nurse for the Royal British Legion. Admiral Nurses originate from Dementia UK, and if you need support, have a look at their website for more info. Leah is also active on twitter: @ericrickards

Robert is a Geriatric Psychiatrist and an Associate Professor in the Faculty of Medicine at the University of Toronto, Canada. Dr. Madan is the Psychiatrist-in-Chief and Deputy Chief of Staff at Baycrest, and is involved clinically in long-term care consultation, and outpatient psychiatry. His academic interests are in the areas of medical education and dementia. Robert is also the Chair of the Products and Services Committee for the International Psychogeriatrics Association.

If you want to find out more about the International Psychogeriatrics Association, and how you can join, have a look at their website here.

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